About this event
Rare disease awareness day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
1 in 20 people will live with a rare disease at some point in their life.
Despite this, there is no cure for the majority of rare diseases and many go undiagnosed.
Rare Disease Day aims to improve knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.
Rare Disease Day events are down to hundreds of patient organisations all over the world who work on a local and national level to raise awareness for the rare disease community in their countries.
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